Priority Impact Quality of Life Grants

2023 Priority Impact Grant Descriptions for ACL

22 Grants Totaling $756,296

Able South Carolina

Columbia, SC 29210

Unique Entity ID:  V3R5TMGX3QB5

$40,000 – Tier 3 Racial Equity

SC’s Employment Equality

Anticipated number of people living with paralysis served:  20

Percentage of Program Budget:  100%

This grant supports employment equality for those living with disabilities within the BIPOC community through employer education using training, resources, and support to expand their disability employment efforts. These services and supports will be provided over an 18-month period to ensure that individuals are entering competent work environments where they have the support and accommodations they need to be successful in the workplace. Funding will be going primarily towards personnel who will be heading up the project, with additional funds diverted for travel for in-person training and indirect costs.

Catalyst Sports Inc.

Atlanta, GA 30318

Unique Entity ID: ZMJSNQ62DYT8

$40,000 – Tier 3 Rural Unserved and Underserved

Promoting Accessibility to Adaptive Cycling for Rural and Underserved People Living with Paralysis

Anticipated number of people living with paralysis served:  153

Percentage of Program Budget:  61%

This grant supports an adaptive bicycle program. Funds will be used to trailer adaptive bikes and additional equipment, drive to a participant’s home, and allow them to demo the bicycles. Along with this, the organization will provide support in selecting the right bike for them. Following this, the organization will return upon selection to assist the individual in customizing the adaptive bike specifically to their liking in order to make sure that it serves them properly going forward. This project seeks to promote inclusivity and integration through opening up adaptive cycling to more individuals in rural areas and fostering physical and mental well-being through accessible recreation.

Grossmont Hospital Foundation

La Mesa, CA 91942

Unique Entity ID:  CANWCUYWCMF5

$30,000 – Tier 2 Assistive Technology

Sharp Grossmont Hospital Loan Closet Program

Anticipated number of people living with paralysis served:  30

Percentage of Program Budget:  91%

This grant supports the creation of a formal loan closet to allow patients with paralysis to test out adaptive devices that can contribute to their independence and quality of life. Through this program, individuals will be able to try out a variety of assistive devices such as AAC communication devices and foot drop kits to not only show people what is available, but also to assist in making an informed decision when it comes to pursuing permanent devices. These individuals will also receive ongoing support and advice for Sharp Grossmont staff regarding the best device for each individual, how to navigate insurance and secure the best pricing, and how to involve caregivers and family members in the process. Funds will be directed towards therapists who will be assisting individuals with these assistive devices, as well as covering the cost of some of the devices, including augmented communication devices, tub bench commodes, and more.

Henry Viscardi School

Albertson, NY 11507

Unique Entity ID:  N/A

$22,242 – Tier 2 Assistive Technology

Assistive Technology Augmentative & Alternative Communication

Anticipated number of people living with paralysis served:  50

Percentage of Program Budget:  100%

This grant supports the purchase of 2 TD Pilots with iPads. The TD pilot is an eye-controlled communication device designed to empower people with conditions such as SCI, cerebral palsy, and ALS to communicate and use a variety of applications. These devices will enable students to be more independent and enable them to better communicate with their peers and teachers to foster a sense of inclusion and belonging.

IM ABLE Foundation

Wyomissing, PA 19610

Unique Entity ID:  R1D4GV4GJ5K7

$25,000 – Tier 3 Rural Unserved and Underserved

Mountain Handcycles For Use On Trails

Anticipated number of people living with paralysis served:  25

Percentage of Program Budget:  63%

This grant supports the purchase of 2 Reactive Adaptations Bomber Off-Road Handcycles. Using these handcycles, this project aims to focus on improving quality of life for individuals living with paralysis through inclusion, access, independence, and opportunities for community engagement. The handcycles will be available through the organization’s loan closet for those interested and will enable them to be able to take part in outdoor adaptive sports and recreation as soon as possible for the individual.

LADACIN Network

Wanamassa, NJ 07712

Unique Entity ID:  VL7GHZCNNHB9

$30,000 – Tier 2 Disaster Preparedness

Residential Facilities Generator Project – Phase 2

Anticipated number of people living with paralysis served:  20

Percentage of Program Budget:  48%

This grant supports costs of removing of an existing generator, replacement of its circuit breaker boxes, and relocation of a new generator to the exterior of an independent apartment complex that houses multiple individuals with physical and developmental disabilities. With the current generator being installed prior to EPA standards, the organization is seeking to secure a new generator in the case of a potential emergency. Through this project, residents with disabilities will be able to live and work safely in their community without the risk of being relocated during a storm or electrical failure.

Lime Hollow Nature Center

Cortland, NY 13045

Unique Entity ID:  N/A

$24,000 – Tier 3 Rural Unserved and Underserved

Lime Hollow Nature Center – Trails for All with the Action Track Chair

Anticipated number of people living with paralysis served:  25

Percentage of Program Budget:  25%

This grant supports the nature center’s Trails for All initiative to make their acquired Action Track Chair, manual trail wheelchair, and accessible indoor bathrooms available 7 days a week through the Visitor Center. As it currently stands, the center is closed on weekends, meaning that individuals living with disabilities are unable to access any of these important resources during this time. Funds will go towards a support position that will coordinate the Track Chair and other accessibility initiatives at the nature center to ensure community access is available. Funds will also go towards durable decking for bridges and their observation deck in order to improve conditions and safety for individuals using the trail chairs in the center. Making this equipment and the facilities more readily available will help to foster independence, inclusivity, and open up further opportunities or individuals living with disabilities to be able to engage in outdoor adaptive recreational activities.

Lowcountry Farm & Rescue

Bluffton, SC 29475

Unique Entity ID:  N/A

$24,900 – Tier 3 Rural Unserved and Underserved

Special Farm for Special Needs

Anticipated number of people living with paralysis served:  200

Percentage of Program Budget:  28%

This grant supports accessibility modifications for the organization’s main facility. Funds will go towards the construction of ramps, widening pathways, and accessible restroom facilities for individuals living with a variety of disabilities. This project will open up a unique opportunity for many people to take part in farm-based activities that provide a therapeutic environment, skill development, responsibility, socialization, and even vocational training for individuals with a variety of disabilities.

Patsy Reeve Foundation

Phoenix, AZ 85021

Unique Entity ID:  N/A

$20,000 – Tier 3 Racial Equity

Adaptive Bikes for Camp Patrick

Anticipated number of people living with paralysis served:  75

Percentage of Program Budget:  29%

This grant supports the purchase of 2 Bowhead Rogue adaptive bikes for Camp Patrick, an annual weeklong summer camp for youth living with spina bifida. These adaptive cycles will be available to the campers to take part in adaptive cycling to teach them how to use them safely and confidently. Through this initiative, the project seeks to impart the physical, social, and emotional benefits of cycling to children who potentially are using such a device for the first time.

Phelps Health

Rolla, MO 65401

Unique Entity ID:  E9LARVN5TLG5

$36,657 – Tier 3 Rural Unserved and Underserved

Rural Patient Transportation Service

Anticipated number of people living with paralysis served:  20

Percentage of Program Budget:  46%

This grant supports the purchase of a wheelchair accessible van (2022 Chrysler Voyager LX Base), as well as covering future maintenance and fuel costs to keep the van operational during the 18-month grant period. The van will be used to expand access to hospital transportation services for individuals living with paralysis, allowing them to be transported from their home to their doctors’ appointments and back on a monthly basis. This project seeks to provide a crucial service through greater access to healthcare in a rural area where getting to a hospital or other medical facility can be a difficult task.

Providence Health Care Foundation Eastern Washington

Spokane, WA 99204

Unique Entity ID:  N/A

$23,100 – Tier 2 Assistive Technology

Expansion of Assistive Technology – autonoMEgo system

Anticipated number of people living with paralysis served:  210

Percentage of Program Budget:  91%

This grant supports the purchase of an autonoMEgo system, which is a portable environmental control and communication system that can be controlled by voice, touch, sip and puff, or head tracking. This allows SCI patients with limited arm or hand function, or full-body paralysis to have more control over their environment and give them tools to allow for greater independence in basic tasks such as calling for nurse assistance, repositioning in bed, changing TV channels, and making phone calls. This device will not only show individuals the kinds of devices available for them post injury, but also instill a greater sense of confidence as they strive for independence as they continue their care.

Qualified Listeners Corp.

Frederick, CO 80530

Unique Entity ID:  QAJ8JF3QN7L3

$40,000 – Tier 3 Racial Equity

Wheelchair Accessible Van for Veterans

Anticipated number of people living with paralysis served:  24

Percentage of Program Budget:  100%

This grant supports the purchase of a wheelchair-accessible van to provide transportation services for veterans within the Qualified Listeners network for a variety of tasks such as medical appointments, running errands, towing, and more. This project intends to make these services more available to veterans in order to provide an important service while also fostering independence and community integration as vehicular transportation becomes more readily accessible.

Roads to Independence

Ogden, UT 84401

Unique Entity ID:  GL2RSNKXUTL8

$50,000 – Tier 4 Nursing Home Transition

Living Independently in Northern Utah

Anticipated number of people living with paralysis served:  30

Percentage of Program Budget:  16%

This grant supports the implementation of a specialized nursing home diversion and transition program for individuals living with paralysis. Funding will be applied to staffing costs associated with life skills instruction, case management, programming supplies, facility expenses, an outreach campaign, and transportation costs. Through the acquisition of additional staff and the coverage of the other listed expenses, the project seeks to promote independent living for people with paralysis, enhance accessibility in their living environments, and promote inclusion and community integration through monthly community, recreational, and peer activities.

Rochester Spinal Association

Rochester, NY 14618

Unique Entity ID:  NFXPTNQAFKK7

$39,900 – Tier 3 Racial Equity

Spinal Cord Injury Health Educator

Anticipated number of people living with paralysis served:  20

Percentage of Program Budget:  90%

This grant supports the onboarding of a register nurse to serve as an SCI Health Educator to conduct regular home visits with people of color living with spinal cord injuries in the city of Rochester. The nurse’s focus will be on teaching the individuals with paralysis and their caregiver to better address potential health complications such as UTIs, bladder and bowel care, pressure sores, autonomic dysreflexia, and respiratory difficulties. Along with the nurse, funds will also be allocated towards additional educational materials, insurance, and additional administration to handle oversight of the project. The project seeks to provide individuals and their families with helpful information to promote independence and knowledge when it comes to home care and living with an SCI.

Services for Independent Living

Cleveland, OH 44132

Unique Entity ID:  CK28XJS9H9J3

$50,000 – Tier 4 Nursing Home Transition

Nursing Home Transition

Anticipated number of people living with paralysis served:  20

Percentage of Program Budget:  86%

This grant supports a nursing home transition initiative that seeks to help ease the shift from a nursing home environment back to one’s home. Funding for this project is intended to help with covering services such as securing housing, obtaining furniture, personal documents, back-pay on utility bills, and even assistance in applying for public transportation. As these services are normally covered by the Ohio Medicaid HOME Choice Program, this funding will allow residents who do not qualify for the program to be able to make the transition back to the community with significantly less restrictions than the current project has in place. Removal of these barriers would foster further independence and help to make the integration process significantly smoother for individuals seeking to return to their homes and communities.

SOS International

Louisville, KY 40206

Unique Entity ID:  T8GEZSYRRC15

$30,000 – Tier 3 Racial Equity

Improving Access to Assistive Technology Through Wheelchair Repair Clinics and Redeployment of DME

Anticipated number of people living with paralysis served:  100

Percentage of Program Budget:  72%

This grant supports a wheelchair repair program operated through an SOS wheelchair specialist and an occupational therapist consultant in order to provide wheelchair service, repair, and replacement clinics at local shelters and agencies that provide resources to low-income and homeless individuals. Where necessary, replacement wheelchairs will be provided from SOS inventory and redeployment durable medical equipment. Grant funds will be utilized on consulting and repair hours for an occupational therapist/assistive technology specialist consultant with expertise in coordinating wheelchair repair clinics, a wheelchair repair specialist’s time during each clinic, wheelchair repair training for additional SOS staff to ensure capacity and sustainability of the project, purchase of any necessary additional wheelchair repair tools and parts including wheelchair batteries.

Spinal Network

Murrieta, CA 92562

Unique Entity ID:  XAYYL9QN5RJ4

$30,000 – Tier 2 Assistive Technology

Assistive Technology Gaming/eSports Project

Anticipated number of people living with paralysis served:  25

Percentage of Program Budget:  49%

This grant supports the purchase of adaptive gaming equipment and additional resources to launch a community based adaptive video gaming and esports program. The equipment purchased will be on loan and used to assist individuals to determine what best suits their needs and even assist with helping individuals with securing funding for acquiring the equipment themselves through avenues including HelpHopeLive, the Department of Rehabilitation, and private funding. The project seeks to provide individuals living with quadriplegia important recreational opportunities within the community as they expand not only to provide individuals with the means for adaptive gaming, but to cultivate a larger adaptive esports community that will expand the scope by which individuals can access the world outside of their homes.

The ALS Association – Southeast Territory

Tampa, FL 33602

Unique Entity ID:  KMHZW7EM1997

$30,000 – Tier 2 Assistive Technology

Assistive Technology Loan Program

Anticipated number of people living with paralysis served:  18

Percentage of Program Budget:  54%

This grant supports the purchase of 3 dedicated speech-generating communication devices with eye gaze trackers and text-to-speech software, along with built in environmental control units to help integrate with cell phones, Alexa, and all Bluetooth compatible devices. These devices will be offered on loan to Florida residents with a verified diagnosis of ALS who are uninsured, underinsured, unable to access their insurance benefits, or waiting for insurance approval. This equipment is invaluable to individuals with ALS due to the nature of the condition and its progression. This technology would allow individuals to be improve their independence, ability to participate more fully in daily activities, and will allow them to more easily communicate as ALS is known to cause loss or decline of motor functions and communication ability.

The ALS Association – Southeast Territory

Dallas, TX 75254

Unique Entity ID:  KMHZW7EM1997

$25,000 – Tier 2 Assistive Technology

Community of Care:  Improving Quality of Life for Person Living with ALS and Caregiver(s)

Anticipated number of people living with paralysis served:  1,365

Percentage of Program Budget:  8%

This grant supports the ALS Association’s Community Care Program. Through this program, individuals living with ALS and their caregivers will be able to take part in one-on-one consultations with local care services managers to navigate through every aspect of the condition. There are also support groups for people living with ALS offered to help with handling the emotional struggles that come with an ALS diagnosis, as well as support groups for caregivers specialized to address burnout and compassion fatigue while creating a social community of caregivers. The program will also offer assessments of durable medical equipment and assistive technology needs, as well as insurance and benefits support to navigate health insurance, disability insurance, Medicare, and Social Security. Lastly, there is also the Youth Caregiver Training Series which is a training and support program for youths who provide care to a family member living with ALS, as well as a bereavement series that addresses anticipatory grief and bereavement from the loss of a loved one. All of these resources help individuals with navigating the challenges that come with ALS and can prove invaluable to families with loved ones diagnosed with the condition.

The Children’s Center

Bethany, OK 73008

Unique Entity ID:  J1L2ANMM3FQ3

$29,141 – Tier 2 Assistive Technology

Assistive Technology Program

Anticipated number of people living with paralysis served:  30

Percentage of Program Budget:  92%

This grant supports a pediatric assistive technology program through the purchase of four augmentative communication devices, including 3 Accents 1400 with eye tracking and 1 Tobii Dynavox Pilot. These devices allow for the use of eye gaze, touch, or switch access to communicate, allowing individuals to express their needs more clearly and communicate with those around them. Through this grant, children and teenagers in the hospital and outpatient therapy clinics will have more opportunities to learn, communicate, and grow using specialized communication technology. These will help to foster independence, inclusion, and the ability to have more participation in their care.

United Cerebral Palsy Association of Greater Cleveland, Inc.

Cleveland, OH 44106

Unique Entity ID:  TV5JCC5DKSG3

$26,038 – Tier 2 Assistive Technology

Assistive Technology:  Living Life Out Loud

Anticipated number of people living with paralysis served:  20

Percentage of Program Budget:  1%

This grant supports UCP’s LeafBridge Alternative Education Program through the purchase of a variety of assistive technology, including switched, adaptive pourers, communication device mounts, suspension systems, and adaptive bikes. Participation in the Alt Ed program already offers education, transition services, community integration, therapy, and daytime nursing care to students who take part, with these devices being used to promote additional independence within the class environment. This project seeks to have students access and actively engage in adapted functional routines, leisure activities, transition services, and community-based instruction.

White River Area Agency on Aging

Batesville, AR 72503

Unique Entity ID:  VJG5FS6CV6B7

$30,000 – Tier 2 Respite/Caregiving

Respite for caregivers and family members for those living with paralysis in North Central Arkansas

Anticipated number of people living with paralysis served:  40

Percentage of Program Budget:  74%

This grant supports respite care for individuals living with paralysis and their families through the coverage of personnel costs on home care aides. Funding will cover 1,464 hours of respite that would benefit caregivers by allowing them time off to properly rest, rebalance, and refocus to succeed in their role. This service is a benefit both to the individual living with paralysis as well as the family and caregivers in making sure that everyone is receiving the necessary care and treatment they need, helping to improve caregiver/family relationships and improve emotional wellbeing for all involved in the process.

2022 Priority Quality of Life Grants

34 Grants Totaling $1,029,908

 RACIAL EQUITY

American Spinal Research Organization DBA North American Spinal Cord Injury Consortium

Niagara Falls, NY  14304-1558

$40,000 – Tier 3 – Racial Equity

Diversity, Equity, and Inclusion in SCI Research

This Priority Impact grant supports a project to increase the number of Black/African American and Hispanic individuals living with a spinal cord injury to participate in clinical and biomedical research and to increase NASCIC membership from these communities and enrolment in NASCIC’s SCI Research Advocacy Course. Funds will be allocated to translating their SCI Research Advocacy Course into Spanish to reach the Hispanic population throughout the US. The Consortium will match SCI advocates who have completed the SCI Research Advocacy Course to research projects for which they are eligible.

Donte Wylie Foundation

Philadelphia, PA  22403

$22,403 – Tier 3 – Racial Equity

A Wheel Family: Gun Violence Survivor Support Group Programs

This Priority Impact grant supports A Wheel Family, a peer-support group for survivors of gun violence living with paralysis. In the city of Philadelphia, data shows those shot in the city as 78% Black (non-Hispanic), 14% Hispanic (Black or White), 6% White (non-Hispanic) and 1% Asian. 87% of those shot are male. In addition to peer support programing DWF plans to hold special events for members and their families, and specialized programs focused directly toward caregivers.

Islamic Center of Detroit, Inc.

Detroit, MI  48228-6100

$40,000 – Tier 3 – Racial Equity

Islamic Center of Detroit Community Center Project

This Priority Impact grant provides increased access to ICD’s community center through the purchase of accessible doors (2 entrances), as well as modifications to make the women’s and men’s bathrooms accessible. ICD is located in one of the most impoverished areas of metro Detroit, which is often exacerbated by barriers to a medical home, regular food or medical care, or enrollment in state and federal resources. ICD offers daily hot meals, a weekly food pantry, mental health wellness counseling, educational and career-based tools needed to obtain gainful employment, and access to state and federal resources in an innovative and grass roots capacity for people in the Brooks, Cody Rouge, Fiskhorn, and Warrendale communities.

 The Legal Clinic for the Disabled, Inc.

Philadelphia, PA  19102-1125

$40,000 – Tier 3 – Racial Equity

Legal Assistance for Low-Income People Living with Paralysis

This Priority Impact grant provides funding for two programs which specifically serve low-income people of color living with paralysis: (1) the Medical-Legal Partnership (MLP) Initiative, which integrates legal services into healthcare settings, thereby employing an innovative, preventative approach to achieve equitable health outcomes; and (2) the Community Legal Outreach Clinic (CLOC) Initiative, a program that provides pro bono legal services in centers and programs in which low-income people of color with paralysis live or otherwise receive services. Anticipated case types include estate planning such as executing Healthcare and Financial Powers of Attorney to ensure that individuals have the support they desire to attend to medical and financial needs; housing and habitability issues to ensure that individuals remain housed in safe, accessible housing; access to public benefits such as Social Security Disability Insurance and Supplemental Security Income; obtaining Protection from Abuse Orders; and family law disputes. LCD will work to foster client dignity and independence by helping clients understand their legal rights, empowering them to choose an appropriate course of legal action if necessary.

A Special Purpose

Broken Arrow, OK  74013

$10,000 – Tier 2 – Respite/Caregiving

Caregiver Respite

This Priority Impact grant benefits families and caregivers of individuals living with paralysis by providing respite retreats to occur between four to five nights per month, serving five families per month. Retreats are designed to strengthen caregiver socio-emotional health and relationships. Because the respite properties accommodate retreat style opportunities, families will find support from others as well as build community while experiencing a get away from daily demands.

Adapt Movement Inc.

Carlsbad, CA  92010

$24,500 – Tier 2 – Assistive Technology

Providing Individuals Living with Paralysis Access to Functional Electrical Stimulation

This Priority Impact grant supports a project to directly impact the health and quality of life of members at Adapt Functional Movement Center and in the community living with paralysis or a disability caused by neurological injury. Funds will be used to purchase a Myelin Myocycle V2 Pro FES cycling system to provide exercise opportunities to the organization’s approximately 50 members living with paralysis. The MyoCycle can help prevent muscle atrophy, reduce spasms, increase blood flow, increase range of motion, and offers unique benefits for people with paralysis.

The ALS Association of Oregon and SW Washington Chapter

Portland, OR  97232-2597

$25,000 – Tier 2 – Respite / Caregiving

Friendly Visitor Volunteer Program

This Priority Impact grant supports the launch of the Friendly Visitor Volunteer Program in the state of Oregon and the lower six counties of SW Washington. This new service program will address the emotional and physical needs of people with ALS paralysis and their family and caregivers, while channeling the goodwill and energy of others in the ALS community who have expressed interest in helping others. Funds will support a volunteer coordinator who will recruit, vet, train, and pair at least 50 volunteers to perform over 100 hours of volunteer service.

Amyotrophic Lateral Sclerosis Association – NY (Greater New York Chapter)

New York, NY 10004-3873

$30,000 – Tier 2 – Assistive Technology

The New York ALS Community Home Ramp Project

This Priority Impact grant provides temporary ramps to people living with ALS within the greater NY region. Funds will also support in-service trainings for fellow health care partners in the community to broaden awareness and generate educational opportunities to connect with harder to reach patients.

Bingham Memorial Hospital

Blackfoot, ID  83221

$12,375 – Tier 3 – Rural Unserved and Underserved

Accessibility Renovation for the HR and Infection Prevention Building

This Priority Impact grant supports an accessibility project at Bingham Memorial Hospital, a nonprofit rural healthcare provider located in Blackfoot, Idaho that serves a diverse population including Hispanics, migrant and seasonal farmworkers, and Native Americans from the Fort Hall Reservation. Funds will be used for the installation of an entrance ramp to its Infection Prevention facility and the modification of an accessible bathroom.

Blanchard Valley Health System

Findlay, OH  45840-1214

$20,525 – Tier 3 – Rural Unserved and Underserved

Assistive Technology for Access and Dignity

This Priority Impact grant supports the purchase of four automated adjustable exam tables. Blanchard Valley Health System serves twelve rural Ohio counties: Lucas, Henry, Hancock, Putnam, Allen, Hardin, Wood, Seneca, Erie, Crawford, Wyandot and Huron. Of these counties, eight have regions designated as MUA/MUP.  This project will provide increased access to the rural populations of these counties who live with paralysis and are seen at AFCCC and will also reduce the risk of injury to caregivers who were previously tasked with lifting the patient onto the current stationary tables.

Brain Injury Alliance of Arizona

Phoenix, AZ  85034-7438

$50,000 – Tier 4 – Employment

Employment Support and Navigation Post Overdose

This Priority Impact grant provides specialized employment support services to Arizonians living with paralysis due to brain injuries and/or who have experienced past opioid addictions. Funds will support an Employment Specialist to navigate the client through their journey of returning to work, including assessing the client to ensure they are medically ready to return to work and advocating for adjustments or accommodations needed during the training period until the employee is comfortable performing job duties.

Communities Actively Living Independent & Free (CALIF) (CIL)

Los Angeles, CA  90014-3921

$40,000 – Tier 3 – Nursing Home Transition

Transitions Reimagined: A CDR-CALIF Post Covid Project

This Priority Impact grant supports the organization’s goal of transitioning five people living with paralysis from nursing homes and/or nursing facilities into their own homes. Independent Living Skills and Peer Counseling services will then be offered to ensure that individuals have the necessary skills to maintain and use their networks of contacts to keep them progressing after treatment.

ConnectAbility of MN

Waite Park, MN  56387

$24,998 – Tier 3 – Rural Unserved and Underserved

2023 Connect Assistive Technology Lab and Loan Closet

This Priority Impact grant supports Minnesota’s 8^th Assistive Technology Lab (AT) and AT lending library and Central Minnesota’s first Assistive Technology lab and lending program. It will be the first program to primarily service rural MN, which consists of 60 out of 80 MN counties. Funds will be used to support program staff and AT equipment such as Bond Bridges (which connects to ceiling fans, fireplaces, and shades), Sip and Puff Switches, Google nests, smart locks, Delta VoiceIQ Faucets, etc. Rural individuals living with paralysis will be able to try adaptive equipment and assistive technology to see what best helps them live to their greatest potential.

Copper Country ISD Equipment Loan for Kids

Houghton, MI  49931

$17,356 – Tier 3 – Rural Unserved and Underserved

UP Adaptive Track and Field

This Priority Impact grant supports an adaptive recreational equipment loaning program in the Upper Peninsula of Michigan, which is an isolated, remote, impoverished, rural area located on the shores of Lake Superior (the nearest opportunity for adaptive sports in Michigan is 525 miles away). The program seeks to strengthen the sense of community, increase independence and inclusion by providing training and loaning equipment to people living with paralysis. Funds will purchase three Dynolight Wheelchair Training Rollers, five Eagle sports chairs, one RAD Innovations bike, and related equipment.

Delta Center for Independent Living

St. Peters, MO  63376

$17,504 – Tier 2 – Assistive Technology

Equipment Exchange Program

This Priority Impact grant supports an Equipment Exchange Program to add a loan option of advanced technology and assistive devices for individuals living with paralysis. Equipment to be added to the program will include: an OBI Robotic Feeding and Dining Assistant (allowing individuals with upper mobility to independently feed themselves during meals); a Smart Drive MX2+ Power Assist System (which converts manual wheelchairs into electric wheelchairs); and a Firefly 2.5 Electric Scooter Attachment (allowing individuals to regain their freedom by allowing them to go over grassy or hilly areas).

FREE – Foundation for Rehabilitation Equipment & Endowment

Salem, VA  24153-4410

$40,000 – Tier 3 – Rural Unserved and Underserved

FREE Expansion to Rural Virginia

This Priority Impact grant supports a collaborative partnership between FREE, Sentara Health, Ballad Health, Goodwill, EMS, JMU, and Emory and Henry College to provide a unified health safety-net meeting the AT equipment needs of rural Virginians with paralysis. Funds will allow FREE to expand services into 17 rural counties: Augusta, Appalachia, Bland, Carroll, Dickenson, Grayson, Green, Highland, Madison, Page, Russell, Shenandoah, Smyth, Tazewell, Washington, Wise, and Wythe Counties. The program will serve thirty-four rural MUA/MUP counties in all.

Goodwill Industries of Orange County

Santa Ana, CA  92703

$21,750 – Tier 2 – Assistive Technology

Assistive Technology Exchange Center

This Priority Impact grant supports Goodwill Industries of Orange County’s Assistive Technology Exchange Center (ATEC). The center offers consultation and assessment services, equipment trials, equipment loans, and technical support in learning how to use assistive technology equipment. This equipment (both high and low tech) can be utilized to mitigate speech, hearing, or motor barriers, therefore maintaining or improving the functional capabilities of people living with paralysis.

The Jerry and Paula Baker Foundation / Tuolumne Trails

Groveland, CA  95321-9737

$38,655– Tier 3 – Rural Unserved and Underserved

Camp Tuolumne Trails – Infirmary/Bathhouses Overhead Lifting Systems

This Priority Impact grant supports the installation of three ceiling mounted lift systems to facilitate the personal care of campers with paralysis. One system will be located in the Infirmary for transferring campers from bed to shower or toilet and two will be installed in the bathhouses. Campers with paralysis most often come from the following surrounding rural counties: Tuolumne County, Alpine County, Calaveras County, Mariposa County, and Mono County. In addition, as a result of their loved one being cared for at Camp Tuolumne Trails, families and caregivers of campers will receive between 96-144 hours of respite in order to recuperate from providing personal and social care for their family member with paralysis. Family members and caretakers will have an opportunity to engage in social activities and prevent further regression of their social skills due to lack of resources for community-based respite.

Mozaic, Inc.

Waterloo, NY  13165-1202

$50,000 – Tier 4 – Employment

Virtual Vocational Training for people living with paralysis and disabilities

This Priority Impact grant establishes a virtual reality (VR) vocational training program for people living with paralysis and cross-disabilities. The VR model improves equity and accessibility by increasing access to educational opportunities that are often unavailable to rural and under-resourced people living with paralysis. This program eliminates such barriers as lack of transportation, cost prohibitive training in a lower income area, and a smaller regional employer base by providing the VR program at no cost to individuals. Hands-on simulation training provides an immersive learning environment that gives participants real-world experiences in the skills they need for well-paying jobs. Guided by a digital coach, they receive personal instruction from experts that teaches them how to perform essential tasks, gives feedback based on their specific actions, and assesses performance in order to help participants improve. Mozaic employment staff will work with participants to assist with job placement and on-going job coaching.

Northwest Colorado Center For Independence

Steamboat Springs, CO  80487-5247

$40,000 – Tier 3 – Nursing Home Transition

Transition Coordination from Institution to Home in Northwest Colorado

This Priority Impact grant supports the transition of people from institutional environments to independent living arrangements. Funds will go towards the hiring of a full-time Independent Living Coordinator, who will assist consumers in effectively navigating the services and network of supports to transition successfully back into the community.

Northwest Suburban Special Education Organization

Mt. Prospect, IL  60056-1111

$26,118 – Tier 2 – Assistive Technology

NSSEO Eye Can Communicate and Engage Project

This Priority Impact grant supports the NSSEO Assistive Technology team to identify students living with paralysis that would benefit from the use of high-tech eye gaze communication systems at NSSEO’s therapeutic day schools and its eight member districts. The systems support student communication and language growth to promote independence, expand participation in the students’ communities and enhance their educational, social and employment opportunities. Funds will provide two eye gaze communication systems so that students can try them out on a trial basis before NSSEO assists them in acquiring their own.

Norton Healthcare Foundation

Louisville, KY  60056-1111

$30,000 – Tier 2 – Respite / Caregiving

Respite Care for Caregivers of Family Members with ALS

This priority impact grant supports the Norton Healthcare Foundation in providing much needed respite to caregivers of family members living with ALS. In Kentucky, Medicaid does not pay for respite care without applying for a special waiver. There is currently a waitlist of at least 6 months to have the special waiver reviewed with an unknown timeframe for approval or denial. Norton will work with caregivers to determine the number of respite visits needed, with the goal being 6 – 10 respite visits per family.

Phoenix Alternatives, Inc.

White Bear Lake, MN  55110-4132

$23,796 – Tier 2 – Assistive Technology

Remote Services and Assistive Technology Lending Library

This Priority Impact grant supports remote services and an Assistive Technology Lending Library for people living with paralysis. The program provides expanded opportunities to access enrichment activities, enhanced career and education services, and increased interactions for community-building. Funds will be used towards personnel, training, and equipment (iPads and adaptive equipment).

Quality of Life Plus (QL+)

McLean, VA  22102

$24,500 – Tier 2 – Assistive Technology

Linking America’s Bravest with America’s Brightest

This Priority Impact grant supports veterans and first responders living with paralysis by offering assistive technology via a loan closet designed and built by university engineering students as part of their Senior Design Capstone Engineering Project. The program will implement 32 QL+ projects at 13 universities and will conduct outreach through national partners, including the DoD and VA hospitals, and other nonprofit organizations to identify service men and women and first responder in need of assistive technology support.

Rocky Mountain Youth Corps.

Ranchos de Taos, NM  87571-4113

$40,000 – Tier 3 – Rural Unserved and Underserved

FURther Together: Canine Crew Employment Accessibility and Expansion

This Priority Impact grant supports a disability advocacy employment program in rural Taos, New Mexico through two building accessibility improvements (automatic push button doors and a hydraulic wheelchair lift). The Canine Leadership Crew employment program is dedicated to employing youth, ages 14-22, with paralysis and other disabilities – the majority of which are non-white (Hispanic, Latino, Native American), low-income youth from nearby rural underserved regions, including many from the Navajo Nation and other Native American Pueblos. Youth are taught to help train, groom, socialize, and care for future service dogs. Additional job skills taught include scheduling group events; scheduling presenters for the disability/health/self-advocacy focused workshops; teaching and tour guiding skills through the exhibit; public speaking skills when doing dog demonstrations, and more.

Silicon Valley Independent Living Center (CIL)

San Jose, CA  95112-6209

$40,000 – Tier 3 – Nursing Home Transition

Nursing Home to Community Transition Services

This Priority Impact grant provides one additional full-time Case Manager to serve 22 individuals living with paralysis to transition from nursing facility care into a home of their choice in the community The Case Manager will work closely with the individual, their medical team, social service team, family and caregivers to create an individualized plan for their transition, including medication and self-care management, hiring and managing personal care attendants, acquiring durable medical equipment and assistive technology, addressing home accessibility modifications, developing social and/or vocational activities, and addressing community mobility.

State of Alaska Wasilla Public Health Center

Wasilla , AK  99654

$3,500 – Tier 3 – Rural Unserved and Underserved

Wasilla PHC Accessibility

This Priority Impact grant funds the purchase and installation of an automatic door opener, which will provide ease of access for individuals with paralysis to enter the Public Health Center. Located near Wasilla Lake and Lake Lucille, Wasilla is one of two towns in the Matanuska Valley. Named after Chief Wasilla, a local Dena’ina chief, it is a former mining town. The Public Health Center serves residents from the Matanuska-Susitna Valley.

Starkloff Disability Institute

St. Louis, MO  63102-1135

$50,000 – Tier 4 – Employment

The Starkloff Career Academy: Thriving in the Workplace

This Priority Impact grant supports personnel and programmatic expenses for Starkloff Disability Institute’s expanded employment program. The program’s three-tiered structure will help individuals living with paralysis acquire the skills necessary to thrive in the workplace and in their chosen careers. Individuals will be able to take advantage of uniquely tailored career counseling services and further increase their independence.

The Shella Foundation

Menifee, CA  92586

$21,000 – Tier 2 – Respite / Caregiving

In-Home Personal Care Respite Scholarship

This Priority Impact grant supports the Shella Foundation’s In-Home Personal Care Respite Scholarship program targeted at family caregivers for individuals living with paralysis who do not have resources for respite care. The program provides 720 hours of in-home care providers for 30  caregivers.

Telluride Adaptive Sports Program

Telluride, CO  81435-9456

$36,140 – Tier 3 – Rural Unserved and Underserved

Telluride Adaptive Sports Program Ski & Handcycle Camps for Tribal Athletes Living with Paralysis

This Priority Impact grant supports skiing and handcycling camps for Tribal athletes living with paralysis. TASP serves Tribal counties in the Four-Corners region (UT, CO, NM, AZ). TASP will provide two 4-day ski camps between January – March 2023, two 4-day handcycle camps between June – September 2023, and two 4-day ski camps between December 2023 – March 2024. Each camp is targeted to reach 4-6 Native athletes living with paralysis, and up to 3 caregivers as needed, plus 2 support staff including one Native athlete. Grant funds will go directly towards ski and handcycle lessons and other program support.

Tribal Adaptive Organization

Kirtland, NM 87417

$40,000 – Tier 3 – Rural Unserved and Underserved

Expanding Capacity by Filling the Gaps

This Priority Impact grant supports Tribal Adaptive Organization, the only national program focused on addressing the unique challenges faced by Native Americans living with paralysis on tribal lands. Support enables TAO to further its mission to use sports as a tool to improve the health, wellness, and independence of Native Americans with physical disabilities. Native Americans experience spinal cord injuries at a significantly higher rate than the rest of society. They also experience lack of access to adequate acute care and rehabilitation. Of the 567 federally recognized tribes there is not a single adaptive sports program. Funds provide partial support for two nine-day summer camps and improve the accessibility of an organizational-owned shuttle bus.

University of Utah, Health Sciences Center

Salt Lake City, UT  84112-9023

$39,986 – Tier 3 – Rural Unserved and Underserved

Adaptive Cycling Engagement and Efficacy in Adults with Spinal Cord Injury (ACES)

This Priority Impact grant provides access to adaptive recreation equipment, via a loan closet, and virtual spinning classes to individuals living with paralysis in rural communities. For individuals residing in rural communities, negative health outcomes associated with paralysis can be exacerbated because of lack of specialized care and minimal proximity to the larger disability community, and access to adaptive recreation opportunities is even more problematic. The Center will offer two 8-week sessions that meet twice per week and will educate individuals about the equipment and adaptations to the equipment, seating and positioning, as well as pressure relief and autonomic dysreflexia. Individuals will also be fitted to the equipment and taught transfer techniques.

Western New York Independent Living (CIL)

Buffalo, NY  14214

$19,802 – Tier 2 – Assistive Technology

Assistive Technology for Independent Living’s Loan Closet

This Priority Impact grant purchases durable medical equipment, assistive technology, portable ramps, and other loan closet equipment such as mobile hotspot devices to access the Internet. This project will improve independent living for individuals living with paralysis by providing access to equipment that creates options for improved daily living.

West Virginia University Foundation

Morgantown, WV  26507-1650

$30,000 – Tier 2 – Assistive Technology

Adventure is for Everyone

This Priority Impact grant supports the acquisition of adaptive recreational equipment for the Adventure is for Everyone project. Three adaptive hand cycles will be purchased to provide accessible recreation experiences via a loan closet to at least 60 individuals with spinal cord injuries.

2021 Priority Quality of Life Grants

17 Grants totaling $499,700

ALS Association Greater Philadelphia Chapter

Ambler, PA 19002-2755

$30,000 – Tier 2 – Respite / Caregiving

Howard I. Abrams In-Home Care Program

This Priority Impact grant supports an in-home custodial care respite program for caregivers of people living with Amyotrophic Lateral Sclerosis (ALS). Custodial care is not covered by Medicare or other private insurance plans. Through the provision of custodial care by home health aides for up to 9 hours per week at no cost to patient families, The Howard I. Abrams In-Home Care Program fulfills two significant needs simultaneously: it allows patients to remain in their own home and be an important part of their family’s lives, while giving family caregivers a much-needed break. Grant funds will provide approximately 1,200 hours for caregivers in need and will provide respite for 21 families in the Abrams Program and represents 7% of the total program budget.

Assistive Technology of Alaska (ATLA)

Anchorage, AK 99503-3505

$30,000 – Tier 2 – Assistive Technology

Mobility Assistive Tech for Independence (MATI)

This Priority Impact grant supports the development of a new state-of-the-art smart home demonstration room within the ATLA Anchorage resource center. This demonstration room will simulate both physical accessibility and technology options. Staff will provide demonstrations on-site and virtually with devices in the categories of computer access, mobility, and environmental adaptations for short-term loans and provide outreach activities to increase awareness of the benefits of home and community-based technology for individuals with paralysis. The MATI Project will also provide participants access through various methods such as speech, switch, and head control. This project will give individuals with paralysis, their caregivers, and providers a better understanding of how home and community-based AT may increase their independence and enhance their quality of life. Funds will provide demonstrations and short-term loans to 50 people living with paralysis and their families and represents 60% of the total project budget.

Community Vision, Inc. (CVI)

Portland, OR 97214-5426

$25,000 – Tier 2 – Assistive Technology

Smart Home AT Demonstration Room & Pilot

This Priority Impact grant supports a Smart Home AT Demonstration Room, loan closet, and pilot Smart Home AT consultations. In addition to in-person opportunities, a video tour of the Demonstration Room will be created and posted on CVI’s website, social media, YouTube, and shared across its networks, which include regional and national disability-related organizations, City of Portland agencies, and State agencies. This project will serve an estimated 70 people living with paralysis and their families. Funds represent 100% of the project budget.

disABILITYsa

San Antonio, TX 78201-2859

$30,000 – Tier 2 – Assistive Technology

Mobile Change Unit Project

This Priority Impact grant addresses multiple barriers to participation in community experiences due to a lack of fully accessible toileting facilities in most public facilities and outdoor venues. The Mobile Changing Unit (MCU) program will feature a 20ft trailer with fully-accessible toileting facilities to meet the needs of those living with paralysis and with ambulatory disabilities. The mobile facilities will include a power hoist/hoyer lift for safe transfers, a height-adjustable universal changing table, a handheld showerhead, and ADA toilet, handlebars, and sink. The MCU will be available at events and community gatherings throughout the San Antonio area. The MCU webpage and educational marketing materials distributed at all MCU deployments will help advance public understanding around barriers that unintentionally impede the inclusion of children and adults with disabilities in community gatherings and experiences. MCU demonstrations will occur at trade shows and community resource fairs to promote the collective use of the MCU and build upon a database of public and private institutions working to ensure diversity, equity, inclusion and access (DEIA) at their events. Funding represents 21% of the total project costs and will serve hundreds of people living with paralysis in the San Antonio region.

Easter Seals Southern California, Inc. (ESSC)

Irvine, CA 92614-5554

$25,000 – Tier 2 – Assistive Technology

Technology Inclusion Project for Maximum Engagement in Remote Adult Day Services

This Priority Impact grant supports ESSC’s Technology Inclusion Project to meet the need for increased and enhanced engagement of 300 adults living with paralysis in Easterseals Southern California’s new Virtual Campus, a digital resource for Adult Day Services participants to learn, connect and access information and instructional content, safely and remotely. While participants and ESSC staff may not be in the same physical location, they can “attend” classes and enjoy activities by accessing online resources across a variety of subjects, including, but not limited to: meditation, fitness, dance, nutrition, yoga, job skills, computer skills, art, music, writing, games and wellness. Virtual Campus resources are designed to work from anywhere, on any device. Funds represent 18% of the total program budget.

Easterseals Delaware & Maryland’s Eastern Shore, Inc. (EDMES)

New Castle, DE 19720-2405

$30,000 – Tier 2 – Assistive Technology

Creating Virtual Access to Easterseals Resource & Technology Demonstration Center

This Priority Impact grant creates virtual access and provides virtual tours for people living with paralysis, their families and caregivers of EDMES’s Resource & Technology Demonstration Center (Resource Center). Funds will be used to improve and increase the Resource Center’s equipment and smart home technology inventory, as well as set up and install the new devices for demonstrations.Types of equipment purchased will include voice activated home assistants, electronic door openers, light switches and devices to control them, such as tablets or iPads. Other assistive items such as anti-scald devices, motion activated lighting and transfer devices will also be included. Funding represents 54% of the project budget and will serve over 30 individuals living with paralysis and their families through short-term loans, AT assistance and virtual Resource Center tours.

Integrative Touch for Kids (ITK)

Tucson, AZ 85704-3884

$30,000 – Tier 2 – COVID-19: Addressing Social Isolation

Integrative Touch for Kids TeleHealth Program

This Priority Impact grant supports a “Whole Child, Whole Family, Whole Community” TeleHealth program and wellness model. The TeleFriend Program pairs an adult and a young person (a “Buddy Team”) to be friends with a child living with paralysis who is hospitalized or isolated at home. The Buddy Team talks, plays games, read stories, shares wellness tools, and provides connection with peers to create social connections and build friendships. The TeleWellness Program provides wellness skills for managing stress, pain, and anxiety for children living with paralysis and their families. One hundred seventy-five children living with paralysis will be served. Funding represents 8% of the telehealth program budget.

Jefferson Health Foundation – New Jersey

Voorhees, NJ 08043-4405

$30,000 – Tier 2 – COVID-19: Addressing Social Isolation

Maressa Center for MS Wellness

This Priority Impact grant supports a virtual wellness program that focuses on promoting physical, emotional, and spiritual wellness while providing an opportunity for social interaction. Classes, workshops and sessions include Tai Chi, chair yoga, meditation, group therapy, cooking demonstrations, painting, drawing and sculpting classes, and lectures on topics including medical cannabis, MS memory research, and the COVID-19 vaccine. A minimum of 50 people living with paralysis will benefit from this program. Funding represents 28% of the project budget.

LiveLikeLou Foundation

Oxford, OH 45056-1801

$30,000 – Tier 2 – Respite / Caregiving

The Great LiveLikeLou Outdoor Clean Up Program for ALS Families

This Priority Impact grant supports a unique program that fills a critical gap in compassionate care for families facing the ALS journey by matching volunteers from the Phi Delta Theta Fraternity to families living with this devastating disease. Volunteers provide COVID-friendly, occasional, and outdoor arms-and-legs support for registered ALS families living with paralysis. Snow-shoveling, yard clean-up, garage clean-out, holiday light hanging, errands, and light repairs, bring dignity, relief, and community, to these families and builds the next generation of advocates through service. Funds aim to provide services to 350 people and represent 43% of the program budget.

Mounting Horizons Inc.

Cypress, TX 77539-5597

$50,000 – Tier 4 – Employment

Finding Your Path

This Priority Impact grant assists individuals living with paralysis with finding and identifying their career path through virtual career exploration modules, work readiness training, work internships/job shadowing, post-secondary counseling, and self-advocacy training. The project focuses on career development, employment preparation, transportation training, independence, and community integration, as well as building motivation and self-esteem. Participants will receive resume assistance, interview training, job placement, and workplace skills training. The Finding Your Path project aims to help 50 individuals living with paralysis achieve independence by finding a career path that relates to their interests and skills as they become self-advocates and integrate into competitive employment. Funding represents 100% of the project budget.

PennCares

Hanover, PA 17331

$21,370 – Tier 2 – COVID-19: Addressing Social Isolation

Isolation – Managing Adjustments after the Pandemic-Webinar Series

This Priority Impact grant provides10 webinar trainings to address social isolation for people living with paralysis. Trainings include: The New Age of Anxiety and Depression: Navigating Consumers through Stress During Chaotic Times; Coping with Change and Loss-Regaining Normalcy from the Impacts of COVID-19; Isolation in Older Adults: Managing Adjustments after the Losses of the Pandemic; Healthy Thoughts in Older Adulthood: Recognizing and Treating Anxiety and Depression; as well as Care for the Caregiver: Using Selfcare to Combat Compassion Fatigue-Participants and others. In addition, loneliness and isolation guide booklets and resources such as tips for staying connected will be distributed to the webinar participants. It is estimated that over 350 individuals will be served through these webinars. Funding represents 100% of the project budget.

Ryan House

Phoenix, AZ 85013-4500

$30,000 – Tier 2 – Respite / Caregiving

Sponsor-a-Stay Program

This Priority Impact grant provides short-term overnight respite care stays for children living with paralysis and life-limiting conditions that help their families take a break from the stress of 24/7 home care. The children with paralysis who participate in respite care at Ryan House include: C1-C4 Spinal Cord Injury, cerebral palsy (including Spastic Hemiplegic and Spastic Quadriplegic), Congenital Muscular Dystrophy, Duchenne Muscular Dystrophy, Spinal Muscular Atrophy, and others. Thirty children will benefit from this respite program as will countless family members.  Funds represent 1% of the full program budget.

Spina Bifida Resource Network (SBRN)

Flemington, NJ 08822

$21,200 – Tier 2 – COVID-19: Addressing Social Isolation

Virtual Empowerment Speaker Series (VES)

This Priority Impact grant expands SBRN’s national Virtual Empowerment Speaker Series (VES) which provides adults with paralysis and other disabilities an interactive space for peer and expert-led discussion, education and skill building. The program is also intended to minimize social isolation, which has increased during the COVID-19 pandemic. VES is designed to optimize physical, social and emotional health and wellbeing and is coordinated by adults with paralysis and nearly all presenters and workshop leaders identify as having a disability. Disabled Black, Indigenous People of Color (BIPOC ) and/or people who identify as LGBTQIA+ are given priority consideration for all of the roles. Funds represent 85% of the program budget and will serve 200 people living with paralysis.

Summit Independent Living (SIL)

Missoula, MT 59803-1489

$29,232 – Tier 2 – COVID-19: Addressing Social Isolation

Promoting Fun and Friendship in the Time of COVID-19

This Priority Impact grant addresses the scourge of social isolation and loneliness during a time when COVID-19 is worsening in SIL’s seven-county western Montana service area. The project will 1) specifically provide outreach to recruit individuals with paralysis, their families, and caregivers including veterans; underserved groups including ethnic minorities and indigenous people, including members of the Confederated Salish and Kootenai Tribes of the Flathead Indian Reservation; the LGBTQ community; low income and homeless people; adults and the elderly; rural communities; and newly injured people with paralysis; and 2) provide virtual services and activities including an Audio Book Club, Adaptive Yoga, CHEW Cooking Classes, Friendship Club, and Role-Playing Game Days. A loan closet of Kindle Fire tablets with Wi-Fi hotspots would be available for checkout by individuals who do not have a computer, tablet, or smartphone to participate on Zoom. A total of 40 individuals living with paralysis are projected to enroll in one or more project activities. Funds represent 95% of the program budget.

Texas Technology Access Program (TTAP)

Austin, TX 78759-5316

$27,899 – Tier 2 – Assistive Technology

Game On! Developing Accessible Electronic Gaming Options for Texans with Paralysis

This Priority Impact grant expands TTAP’s loan closet to include accessible gaming kits in Xbox and PlayStation platforms, mounting kits for the Xbox adaptive controller, and additional switches/controllers to support people with paralysis in decision making for modified gaming, and will create in-the-box and video training materials to support consumers in setting up the accessible gaming kits. Additionally, TTAP intends to demonstrate the kits at information awareness events such as the two Abilities Expos that occur in Texas annually and to engage with Comicpalooza (a large-scale popular culture con in Houston) and the well-known SXSW Conference (a tech conference in Austin) to expose the general technology population, consumers and vendors to accessible gaming. TTAP expects 20 people living with paralysis to be served through the program, up to 30 people served through the loan closet and countless others at the events. Funds represent 78% of the program budget.

The Spina Bifida Association of Central Florida

Orlando, FL 32801-1018

$30,000 – Tier 2 – COVID-19: Addressing Social Isolation

Peer Mentoring and Networking

This Priority Impact grant establishes a peer mentoring and networking program to address social isolation in teens and adults and the need for social connection and aid in physical and mental health support of people living with paralysis. A whole-person approach that focuses on physical, social, emotional, and intellectual wellness will be utilized. The program will include a two-part approach 1) Virtual Peer Mentoring and 2) In-Person Group Activities and Recreation. Approximately 180 individuals will be served. Funds represent 100% of the program budget.

Utah Assistive Technology Program

Logan, UT 84322-6855

$29,999 – Tier 2 – Assistive Technology

Tremor assistive technology demonstration and loan library

This Priority Impact supports a loan closet that will benefit people with paralysis who are experiencing tremors by providing demonstrations to agencies, families and individuals and loaning out devices that will increase their independence, inclusion and quality of life. Equipment will include tremor devices, weighted eating utensils, computer aids, writing devices, etc. One hundred people living with paralysis will be served through the program. Funding represents 100% of the project budget.

2020 2nd Cycle High Impact Priority Quality of Life Grants

14 Grants totaling $477,644

Able South Carolina (CIL)

Columbia, SC 29210

$50,000 – Employment

Paving the Path for Workforce Inclusion

This High Impact Priority grant supports employment services and supports, including individualized services, peer support groups, and referral to other supports, to individuals living with paralysis in Richland and Greenville Counties in South Carolina.

ALS Association Golden West Chapter

Agoura Hills, CA 91376

$30,000 – Respite/Caregiving

ALS Respite Care: Improving Quality of Life and Caring for the Caregiver

This High Impact Priority grant provides respite care for 40 families who live with the challenges of ALS every day in 31 counties in California and the state of Hawaii.

Center for People With Disabilities

Boulder, CO 80301

Nursing Home Transitions for People with Paralysis

This High Impact Priority Grant supports a program that assists people living with paralysis in accessing appropriate housing and transitioning into their own homes.

EOD Warrior Foundation

Niceville, FL 32578

$15,000 – Respite/Caregiving

Volunteer Supported Non-Medical Respite & Socialization Program

This High Impact Priority grant supports the development of a volunteer training program to assist and increase socialization of paralyzed, mobility challenged, and wounded veterans and provide non-medial respite care for their families. In 2021, the Foundation hopes to train 100 volunteers, assisting 50-100 families.

George Mark Children’s House

San Leandro, CA 94578

$27,655 – Respite/Caregiving

Psychosocial Services for Respite Clients with Paralysis

This High Impact Priority grant provides respite care for parents of 50-60 children with paralysis with complex physical and medical needs and 175 family members. Families are ethnically and linguistically diverse, reflecting the demographics of the San Francisco Bay Area, and over half are low to very low income.

Handi-Wheels Transportation

Fargo, ND 58102

$30,000 – Transportation

Handi-Wheels Transportation Wheelchair Accessible Van

This High Impact Priority grant supports a wheelchair accessible van to provide crucial transportation service to people living with paralysis to access medical care and participate in other activities so vital to people’s overall well-being and self-sufficiency.

Hope Network

Grand Rapids, MI 49546

$50,000 – Employment

Hope Network’s Vocational Services Return to Work Program for Individuals with Spinal Cord Injuries

This High Impact Priority grant supports the Hope Network Return to Work program which focuses on creating competitive employment opportunities. This involves a thorough assessment of the person’s strengths, barriers, and interests; resume development; individualized job search; employer development; interview coaching; job matching; benefit counseling; identification of various challenges; and follow-up for a year to resolve any issues that arise. The program also includes evaluation services, situational assessments, and rehabilitation counseling. Hope Network will also launch an SCI Return to Work Advisory Panel consisting of a project coordinator, at least one individual with a SCI, several local employers, and at least one rehabilitation clinician.

IndependenceFirst (CIL)

Milwaukee, WI 53204

$40,000 – Nursing Home Transition

Developing a Virtual Transition Program for Sustainable Community Living

This High Impact Priority grant supports IndependenceFirst to develop and implement a virtual transition approach and increase coordination of support resources to empower independent living for individuals living with paralysis. Program participants will have the choice to utilize Independence First’s Independent Living Skills training, access to a Benefits Specialist, Assistive Technology Specialist, Personal Attendant Services, Peer Support through virtual support groups, and access to a low-interest loan for assistive technology.

On My Own, Inc

Nevada, MO 64772

$50,000 – Employment

On My Own, INC Supported Employment Program

This High Impact Priority grant supports a new employment program with integrated supported employment services to help people living with paralysis and other cross-disabilities to obtain and maintain competitive employment, build a career, and become a valued member of the workforce. Integrated employment services are provided in a community setting. Ongoing supports may be included as an integrated employment service if they are needed for the individual to maintain their job. The individual’s preferences, interests, and capacities drive the choice of the job and career.

RAMP – Regional Access & Mobilization Project (CIL)

Rockford, IL 61107

$24,989 – Employment

RAMP Employment Services

This High Impact Priority grant provides employment services including resume development, master application development, interview skills training, career exploration, soft/Essential skills training, transportation training, job seeking skills training, job shadow/volunteer opportunities, job placement, job retention services, and benefit planning assistance/referral to people living with paralysis.

Resource Center for Independent Living, Inc. (CIL)

Utica, NY 13501

Preparing for an Emergency: Ensuring Central New Yorkers With Paralysis Are Ready for Anything

This High Impact Priority grant supports the creation of an emergency preparedness online resource center and working group that will help members of the community living with paralysis and their caregivers plan and prepare for disasters. The online resource center will be a repository of information targeted toward individuals with paralysis and the emergencies most likely to occur in the Mohawk Valley region of New York.

Special Kids Special Families

Colorado Springs, CO 80916

$30,000 – Respite/Caregiving

Circle of Support Respite Program

This High Impact Priority grant supports a program to address the respite care needs of adults living with paralysis and other developmental and behavioral needs with in-home respite care designed to improve the wellbeing of clients and caregivers. This respite care will decrease the isolation that is a perpetual issue for individuals with mobility limitations and those at high medical risk; a problem that has been greatly exacerbated by the pandemic. Respite will also relieve caregivers, allowing them to engage in self-care that is often challenging when caring for someone who requires high levels of assistance with daily living.

The ALS Association of Georgia

Atlanta, GA 30328

$30,000 – Transportation

The Paul B. Williams ALS Transportation Program of The ALS Association of Georgia

This High Impact Priority grant supports a program to address the transportation needs of individuals who have been diagnosed with ALS providing them access to quality care and the ability to attend family, cultural and spiritual events that positively impact the quality of life.

The ALS Association, Minnesota, North Dakota, South Dakota Chapter

St. Paul, MN 3596

$30,000 – Respite/Caregiving

The Jack Norton Family Respite Program

This High Impact Priority grant supports the Jack Norton Family Respite Program to provide rest and relief to dedicated caregivers of people living with ALS. The Respite Program is a vital support to the caregiver dynamic and directly affects the quality of life in the home of a person living with ALS. Caregiver burnout can result in physical and emotional strain, which decrease the quality of life of a person living with ALS and increase risks of injury for all people involved in care. This program, the only of its kind serving the ALS population, operates on a year-round basis across a service area, which includes all of Minnesota, North Dakota and South Dakota.

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2019 2nd Cycle High Impact Priority Quality of Life Grants

17 Grants Totaling $520,000

Grants are funded through a cooperative agreement with the Administration for Community Living (ACL) (Cooperative Agreement Number 90PRRC0002-01-01)

Amyotrophic Lateral Sclerosis Association – NY (Greater New York Chapter)

New York, NY 10004-3873

$30,000 – Transportation

The Greater New York Patient Transportation Expansion Project

This High Impact Priority grant will support a transportation program that offers rides at no cost to ALS patients traveling to clinic appointments throughout all of NYC, Long Island and Queens, the Hudson Valley, and Northern & Central New Jersey. Due to the fast and ongoing progression of the disease, people with ALS often find it difficult to leave the home and travel, as they require specialized assistance and accessible modes of transport. These services are provided to patients who otherwise would not have the means for safe and dignified transportation.

Barrow Neurological Foundation

Phoenix, AZ 85013-4414

$30,000 – Transportation

Transportation Assistance Fund for the Barrow Neuro-Rehabilitation Center

This High Impact Priority grant will provide reliable transportation to and from outpatient appointments for individuals living with paralysis. Transportation is also provided for community outings and opportunities where patients, as part of their rehabilitative journey can take that first trip to the bank, the grocery store or support group by utilizing the ride share or medical transport company under the safety net of Barrow, before they need to do so on their own.

Center for Independent Living of Broward

Fort Lauderdale, FL 33319-5805

$40,000 – Nursing Home Transition

Nursing Home Transition Program for People with Paralysis

This High Impact Priority grant will expand the Center’s Nursing Home Transition Program to help people with paralysis and other cross-disabilities move from institutional settings to independent living. Funds provide installation of smart technology of up to ten apartments allowing more individuals with spinal cord injury (SCI) to transition to independent living. The Center currently leases several multi-bedroom apartments renovated to accommodate those with limited mobility or who use wheelchairs. Smart Home Technology will ensure the health, welfare and safety of the participant enabling them to function with greater independence and prevent institutionalization.

Children’s Hospital of Wisconsin Foundation

Milwaukee, WI 53214-1599

$30,000 – Respite/Caregiving

Children’s Hospital of Wisconsin Community-based Volunteer Respite Care Program

This High Impact Priority grant will support a respite care program that proves 8-10 community-based respite events annually. The events are free to families and offered in locations (school, church, or university) throughout the Milwaukee area. Events offer inclusive, age- and developmentally-appropriate activities, including arts and crafts projects, interactive games, sports, bingo, face painting, music, and entertainment. Volunteer nursing staff meets the medical and toileting needs of those attending respite events. Funds will support expansion of program reach to serve more families, including those on wait lists.

Communities Actively Living Independent & Free (CALIF) (CIL)

Los Angeles, CA 90014-3921

$40,000 – Nursing Home Transition

Transition, with Peer Counseling on Waivers & Rescue

This High Impact Priority grant will 1) transition four people living with paralysis from nursing homes and/or skilled nursing facilities, to their own homes through a thoughtful case management process. 2) Provide Independent Living Skills and Peer Counseling to the tranisitioning recipients and ensure the skills they need to efficiently manage and use their network of contacts and resources to keep them progressing after their treatment. 3) Conduct a study on the use of waivers for home care. 4) Ensure inclusion of People with Disabilities, Especially those with Spinal Cord Injuries, in Disaster Preparedness Planning.

Eden I&R

Hayward, CA 94541-5004

$30,000 – Disaster Preparedness

Disaster Preparedness Project

This High Impact Priority grant enables Eden I&R to expand upon free Disaster Preparedness trainings for individuals living with paralysis and their families. During the 12-month grant period, EIR anticipates serving at least 100 people with paralysis and at least 150 family members and caregivers at trainings specifically targeting individuals living with paralysis. Additionally, EIR plans to distribute emergency preparedness materials to 7,500 individuals at events and meetings targeting populations with access and functional needs (AFN). Trainings will be conducted throughout Alameda County, CA and topics will include personal preparedness, agency preparedness, Planned Safety Power Shutoffs, active shooter/workplace violence, and many more.

Headwaters Regional Development Commission

Bemidji, MN 56619-0906

$5,000 – Transportation

Hubbard County Medical Transportation Shuttle

This High Impact Priority grant will support a non-emergency medical shuttle. The service operates twice a week from Park Rapids (pop. 4,000) using a 15-passenger bus which includes accommodations for two wheelchairs. The shuttle will stop at any requested medical facility in Fargo such as the VA Hosptial, Sanford Rehabilitation Hospital, and Sanford Brain & Spine Clinic.

Lifespan Respite Washington, PAVE

Tacoma, WA 98465-1900

$30,000 – Respite/Caregiving

Lifespan Respite Voucher Grant Program

This High Impact Priority grant will provide respite vouchers for unpaid, unserved family caregivers who provide 40 or more hours of direct care, monitoring, and/or supervision. This will benefit caregivers by reducing isolation and increasing positive self-care, normalizing newfound roles and reducing associated stigma. It will help caregivers maintain their own health and wellbeing–a side benefit to the individual who has a disability who might otherwise lose the ability to remain in place in their home settings and gain more access to community supports.

Linking Employment, Abilities and Potential (LEAP) (CIL)

Cleveland, OH 44113-3412

$40,000 – Nursing Home Transition

Welcome Home Transition Services

This High Impact Priority grant will provide nursing home transition services to approximately 35 individuals with neurological conditions living in NorthEast Ohio including but not limited to spinal cord injury, traumatic brain injury, stroke, cerebral palsy, multiple sclerosis, ALS, etc. Services include transition planning and coordination, discharge planning participation, as well as follow-up within first 90 days to evaluate consumer’s adjustment to transition and determine additional needs and supports.

Miracle Flights for Kids

Las Vegas, NV 89119-2120

$30,000 – Transportation

Medical Flight Support

This High Impact Priority grant will support the Medical Flight Program which provides free commercial air transportation to individuals who are battling rare medical disorders and would otherwise lack access to specialized medical care. Funds will be used for about 75 life-saving flights for individuals with paralysis causing conditions and their families.

Mission to Assist and Provide for Seniors (MAPS Charities)

Sherman Oaks, CA 91423-2717

$25,000 – Respite/Caregiving

Transportation and Respite Caregiving Project

This High Impact Priority grant will expand MAPS Charities services by building out a model that combines client transportation with respite care for underserved seniors with paralysis. MAPS will engage professional caregivers through licensed agencies that are equipped to provide transportation for fragile seniors with mobility challenges. These caregivers will also be available to provide supplemental support including prescription pick-ups, meal preparation, and other services as needed.

Movimiento para el Alcance de Vida Independiente

Hato Rey, PR 00928-5277

$30,000 – Disaster Preparedness

Emergency Preparedness for People with Disabilities

This High Impact Priority grant will offer an extensive training program and educational tool specifically designed for the safe and effective handling of people living with paralysis and other disabilities in the mitigation, preparedness, response and recovery efforts before, during and after a disaster or emergency. Workshops will be offered to organizations servicing people with disabilities and general public; one thousand (1,000) individuals with paralysis, mobility issues and disabilities in general, caregivers and members of their families on the effective way to prepare themselves for a disaster or emergency with an educational manual to be provided with the training. A capacity building program will be offered to fifty public and private agencies, community leaders, shelter administrators, elderly homes, organizations and volunteers related to the first response efforts. An average of 500 participants will be educated during these trainings. A “Train the Trainer” Program will be included in order to ensure a cross sector partnership approach that will provide a multiplying effect in the reach to additional areas of Puerto Rico.

Norton Healthcare Foundation

Louisville, KY 40202-1902

$30,000 – Transportation

Norton Healthcare Adapted Driving Education Program

This High Impact Priority grant will offer people living with a neurological condition an adaptive driving program consisting of driving assessments and behind the wheel training to increase each person’s ability to drive safely on the road. Depending on the type of adaptive equipment needed, the person will spend 3-30 hours of specialized training. The goal is to assist up to 18 people per month with driving assessments and behind the wheel training for approximately 216 people participating in the adapted driving program in its first year.

Progressive Workshop of Armstrong County

Kittanning, PA 16201-1311

$30,000 – Transportation

Employment Readiness and Skills Building

This High Impact Priority grant supports the Adult Achievement Center, an adult training program that serves individuals who are interested in being active members of their community and supports adults as they seek to increase their independence in social opportunities and community involvement. Funds will secure a wheelchair accessible van to transport individuals living with paralysis and those who use a wheelchair to and from the Center.

Rehabilitation Hospital Of The Pacific (REHAB) Foundation

Honolulu, HI 96817-2421

$30,000 – Transportation

Transportation Access for Individuals Living with Paralysis and their Caregivers

This High Impact Priority grant will enable REHAB to complete funding toward the purchase of a retrofitted 2020 Toyota Sienna L5 mobility van for its main facility located in Honolulu, Hawaii that will serve the transportation needs of up to 1,320 patients living with paralysis. REHAB will also assist in effecting a smooth transition from the hospital to the home by carefully and purposefully preparing caregivers and doing site inspection visits, training patients and caregivers in a variety of mobility issues.

The Whole Person (CIL)

Kansas City, MO 64111-1913

$40,000 – Nursing Home Transition

Quality of Life Transitions for People Living with Paralysis

This High Impact Priority grant will allow TWP staff to serve Kansas consumers with paralysis as well as Missouri consumers, whether or not they would qualify for Missouri’s federal demonstration grant Money Follows the Person (MFP) program, while providing more flexible, individualized support as they transition from nursing home environments back into their homes or a community-based setting of their choice.

University of Nebraska Foundation

Lincoln, NE 68198

$30,000 – Transportation

Munroe-Meyer Institute Recreation Therapy

This High Impact Priority grant will support a portion of the purchase price for a new, accessible van to povide safe and reliable transportation for people living with paralysis and other cross disabilities to offsite recreational and social activities. Research shows that an increasing number of young adults with intellectual, physical and developmental disabilities suffer from social isolation and depression after graduation. Their evenings are frequently spent alone in their rooms and the confines of family or group homes. Activities such as sporting events, movies, theater productions, outdoor adventures, bowling and participation in a wide variety of clubs that the Institute co-sponsors with Omaha Public Schools and other community organizations — enriches their social lives. This, in turn, elevates their self-concept and reduces isolation and depression.

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2019 1st Cycle High Impact Priority Quality of Life Grants

7 Grants Totaling $232,266

Grants are funded through a cooperative agreement with the Administration for Community Living (ACL) (Cooperative Agreement Number 90PRRC0002-01-01)

Ability360

Phoenix, AZ 85034

$40,000 – Nursing Home Transition

Transition from Nursing Home to Community Living

This High Impact Priority Quality of Life grant supports a program that assists nursing home residents’ transition back into their communities by introducing them to Independent Living Philosophy and developing independent living plans that include Independent Living Skills Instruction and resource development in housing, transportation, education, social/recreational activities, self-advocacy skills and family. Grant funds will support the costs of four people living with paralysis transition into independent living.

Amyotrophic Lateral Sclerosis Association – Arizona Chapter

Phoenix, AZ 84004

$30,000 – Transportation

ALS Clinic and Program Transportation

This High Impact Priority Quality of Life grant supports wheelchair accessible transportation for individuals living with ALS. The ALS Arizona Chapter holds 19 multidisciplinary clinics each month, at which patients see a neurologist, respiratory therapist, dietician, social worker, occupational therapist, and physical therapist. Support will enable ALS Arizona to meet the increasing demand for accessible transportation, which averages $300 per round-trip for local distance and can run up to $800 for those living in rural Arizona. Approximately 200 individuals with ALS, their family members, and caregivers will benefit from this transportation service.

Amyotrophic Lateral Sclerosis Association – Pennsylvania (Greater Philadelphia) Chapter

Ambler, PA 19002

$30,000 – Respite/Caregiving

Howard I. Abrams In-Home Care Program of the Patient Care Services Program

This High Impact Priority Quality of Life grant supports a program that offers respite to family members and caregivers of individuals living with ALS by providing up to 12 hours a week of custodial care. The Greater Philadelphia ALS Chapter serves over 1,100 people yearly and covers a broad service area that encompasses eastern and central Pennsylvania, central and southern New Jersey, and all of Delaware. Grant funds will support 1,500 hours of custodial care, improving the quality of life of 250 individuals.

New Horizons, Inc.

Unionville, CT 06085

$30,000 – Transportation

New Horizons – Accessible Transportation to Medical Appointments

This High Impact Priority Quality of Life grant supports a program that supports wheelchair accessible transportation. Programming will expand to include non-emergency medical transportation to New Horizons’ 101 residents as well as disabled community members. Grant funds will support the expansion of the current transportation fleet, increasing the number of accessible vans from 6 to 7. Funding represents 81% of the wheelchair accessible van cost at $37,048.

Rancho Research Institute / Rancho Los Amigos National Rehabilitation Center

Downey, CA 90242

$48,742 – Employment

Rancho Works Café and Gift Shop: Changing the Image of Disability to Ability, One Job at a Time

This High Impact Priority Quality of Life grant supports an employment program that helps participants with paralysis sharpen their work skills and increase their confidence before transitioning to competitive employment. Grant funds will support the salaries and training of seven program participants, allowing the program to expand from five participants to nine during 2019.

Services for Independent Living

Cleveland, OH 44132

$28,524 – Disaster Response

The ABC’s of Disaster Preparedness for Persons with Disabilities

This High Impact Priority Quality of Life grant supports a program that will provide trainings to individuals with paralysis and social services professionals on how to plan for an emergency, including the development of a personal emergency plan. Trainings will cover emergency response from assembling go-bags, to the basic supplies that should be on hand, developing community resources, natural supports, shelters and identifying communication mechanisms. Over 340 people across the Cuyahoga, Lake and Geauga, Ohio counties will be affected by these trainings.

The Spina Bifida Association of Central Florida

Orlando, FL 32801

$25,000 – Transportation

Adaptive Driving Program

This High Impact Priority Quality of Life grant supports an adaptive driving program for young adults living with Spina Bifida. Grant funds will subsidize the initial assessment of 40 drivers, as well as orientation classes taught by SBACF staff that will provide program participants with program information and resources for vehicle modification. Funding represents 100% of the overall project cost. Approximately 150 people with Spina Bifida, their family members, and caregivers will be served by this grant.

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2018 1st Cycle High Impact Priority Quality of Life Grants

18 Grants Totaling $679,922

Grants are funded through a cooperative agreement with the Administration for Community Living (ACL) (Cooperative Agreement Number 90PR3002)

Abilitree
Bend, OR 97702
$50,000 – Employment
Rural Job Development for People with Disabilities
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support the expansion of job development services for people with disabilities to areas of rural Central Oregon.

Access to Independence of San Diego, Inc.
San Diego, CA 92108
$40,000 – Nursing Home Transition
Oahu Ho’olilo Project
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support the replication of their successful transition program in their Hawaii branch. People living with paralysis who reside in skilled nursing facilites, rehabilitation hospitals and acute-care hospitals will be assisted in transitioning to community-based living.

Amyotrophic Lateral Sclerosis Association – NV (Nevada Chapter)
Las Vegas, NV 89120
$30,000 – Transportation
pALS Transportation Program
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will allow this organization to provide wheelchair accessible transportation on demand to ALS patients to visit various ALSA health and social services clinics.

Bay Area Center for Independent Living, Inc.
Salisbury, MD 21804
$50,000 – Employment
Paralysis to Placement
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will help those living with paralysis to find gainful employment thus increasing the sustainability of their community-based living.

Burke Rehabilitation Hospital
White Plains, NY 10605
$30,000 – Respite/Caregiving
Launching a First-of-its-Kind Caregiver Center at Burke Rehabilitation Center
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support Burke’s new caregiver center which will provide support, education and programs to help alleviate stress and to plan for and improve a patient’s recovery.

Caregivers Workforce Development Institute
Placitas, NM 87043
$30,000 – Respite/Caregiving
Caregiver Leadership and Coping Skills
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support workshops and skills training for caregivers of people with paralysis leading to better care for pe